Voices for Multiple Sclerosis: United Organizations Advancing Equity, Access & Empowerment.
Multiple Sclerosis (MS) presents complex medical, emotional, and social challenges for individuals and communities. Across the healthcare ecosystem, a growing number of organizations are stepping up to make a difference through research, advocacy, access to care, and patient support. The following changemakers are united by a shared mission: to improve outcomes, empower lives, and create a more equitable future for those affected by MS.
MSSI: From Grassroots Care to National Policy Impact
The Multiple Sclerosis Society of India (MSSI), established in 1985, is a registered non-profit organization dedicated to supporting Persons with Multiple Sclerosis (PwMS), their caregivers, and families. With nine active chapters across India and over 3,000 registered members, MSSI operates at two levels. At the central level, it advocates for inclusive policies for PwMS through strategic campaigns and policy recommendations submitted to ministries like the MoH&FW, MoF, MoSJ&E, and ICMR. These interventions have been well received both nationally and internationally.
Among its key national advocacy efforts, ReassessMS addressed gaps in disability assessments that overlooked invisible symptoms like fatigue and cognitive issues. Following the campaign, the government issued revised guidelines in March 2024. The Numbers Matter campaign highlighted the lack of MS prevalence data in India, prompting the ICMR to launch the National MS Registry. Another ongoing initiative, InsureMyMS, advocates for inclusive insurance coverage for MS patients and is backed by a forthcoming white paper aimed at transforming India’s health insurance landscape.
At the regional level, MSSI provides a wide spectrum of services: home nursing care and physiotherapy, free medical camps, and medicine reimbursements for underprivileged members. During the pandemic, MSSI ensured access through online doctor consultations. To support daily living, the organization distributes mobility aids like wheelchairs and walkers, along with comfort and hygiene products such as diapers, catheters, and commode chairs. It also organizes yoga sessions to promote physical and mental well-being and offers counselling support to help patients and caregivers manage the emotional toll of MS. Additionally, scholarships are provided to children of MS patients and financially struggling families to ensure uninterrupted education.
Through these sustained efforts, MSSI continues to make a transformative impact on the lives of people affected by MS across India.
Swarga Foundation: Redefining MS Care and Accessibility in India
Founded in 2014 by Swarnalatha J, an MS warrior herself, Swarga Foundation has emerged as a national force in the Multiple Sclerosis (MS) space, seamlessly combining compassion with innovation. Based in Coimbatore, the foundation has touched the lives of over 10 crore people globally through transformative initiatives in accessibility, rehabilitation, advocacy, and outreach.
At the core of its MS support efforts is the Sowkhya Pain Rehab Clinic, a one-of-a-kind center offering free neuro-rehabilitation in partnership with the Coimbatore Municipal Corporation. This initiative is further strengthened by a pioneering home care program run in collaboration with Pallium India, bringing physiotherapy, counseling, and medical aid directly to bedridden patients, ensuring they receive care in the comfort of their homes.
Swarga’s commitment to accessibility led to the launch of Sarathi, Tamil Nadu’s first wheelchair-accessible cab service, empowering persons with disabilities with greater independence and mobility. The foundation’s advocacy has also driven accessibility redesigns in public infrastructure, including railway stations and police departments.
Their large-scale awareness campaigns have educated over 1 crore people, fostering early diagnosis and reducing stigma associated with MS and other neurological conditions. In addition, Swarga Foundation extends support through assistive devices and financial aid for MS treatment, making a tangible difference in the lives of those affected.
With a remarkable record of over 100 awards, including prestigious honors from the President and Governor of India, Swarga Foundation continues to be a beacon of inclusive healthcare and social change, championing the rights, dignity, and well-being of every individual living with MS.
Bajaj Allianz: Securing the Future for MS Patients with Inclusive Insurance
Bajaj Allianz General Insurance is making significant strides in advancing equity, access, and empowerment for individuals living with Multiple Sclerosis (MS) by offering comprehensive coverage through both its indemnity and critical illness products. In a country where healthcare costs can be overwhelming, this support is a critical lifeline for MS patients and their families.
Through its flagship Criti Care – Critical Illness Insurance Policy, Bajaj Allianz covers MS among 43 critical illnesses, offering a lump-sum payout upon diagnosis—with no hospitalization requirement. This enables patients to access specialized treatments, therapies, and long-term care without the burden of immediate financial strain. With sum insured options ranging from ₹1 lakh to ₹50 lakhs for individuals aged 18 to 65, and lifetime renewability, the policy is designed to address both the immediate and evolving financial needs of diverse age groups.
Further strengthening its MS coverage, Bajaj Allianz includes the condition in its Health Guard Policy, which provides hospitalization benefits, and its Global Health Care Policy, which extends access to international treatments. Together, these offerings ensure comprehensive protection—from diagnosis to global care—across various stages of MS management.
By integrating Multiple Sclerosis into its mainstream insurance portfolio, Bajaj Allianz demonstrates a deep commitment to inclusive healthcare. These efforts reduce financial barriers, promote timely interventions, and empower patients to manage the condition with dignity and confidence. In doing so, the company plays a crucial role in advancing MS inclusion and reshaping India’s insurance landscape for chronic and neurological conditions.
TATA AIG: Strengthening the Financial Shield for MS in India
TATA AIG General Insurance is playing a pivotal role in reshaping access to healthcare for individuals living with Multiple Sclerosis (MS)—a complex neurological condition affecting over 2 lakh people in India, primarily between the ages of 20 and 50, the most productive years of life. Guided by a commitment to affordability, dignity, and protection, TATA AIG is developing thoughtfully tailored insurance products that address the unique medical and financial needs of this community.
Among its offerings, the MediCare Premier plan stands out for its high sum insured options of up to ₹3 crore, addressing the substantial treatment costs associated with chronic neurological illnesses. This policy includes a Restore Benefit, cash support during prolonged hospitalization, coverage for advanced diagnostics like PET-CT and MRI, and even emergency air ambulance services. The plan further extends global coverage for planned hospitalization, recognizing the growing demand for specialized international treatment.
Recognizing the devastating impact of critical illness expenses, TATA AIG’s MediCare Select introduces the Infinite Advantage feature, which allows unlimited coverage for a single claim during the policy lifetime, removing caps on treatment costs when it matters most. Additionally, customizable riders such as OPD Care, psychological therapy, and international second opinions ensure holistic and adaptable protection.
For those seeking benefit-based plans, Criti Medicare offers a lump-sum payout upon MS diagnosis, along with waiver of premium and routine health check-ups, supporting patients throughout their journey with compassion and security.
Evolving its underwriting practices to be more inclusive of individuals with pre-existing neurological conditions, TATA AIG is committed to advancing equity in healthcare access. On World MS Day, the company reaffirms its mission to raise awareness, amplify patient voices, and build insurance solutions that empower every Indian living with MS to move forward with confidence and care.
Roche: Advancing Hope and High-Efficacy Solutions for MS Patients in India
Roche is dedicated to addressing the unmet needs of Multiple Sclerosis (MS) patients in India, establishing itself as a trusted partner in navigating the complexities of this challenging neurological condition. The landmark launch of Ocrevus (Ocrelizumab) in India in 2024 marks a transformative step in MS management, offering renewed hope to those living with the unpredictable symptoms of MS. As Roche’s flagship and blockbuster molecule worldwide, Ocrevus stands out as the only monoclonal antibody drug approved for both Relapsing Remitting MS and Primary Progressive MS, backed by over 10 years of robust clinical and real-world evidence.
Globally, Ocrevus has treated over 400,000 patients, with more than 350 patients in India benefiting since its launch. Its proven efficacy in significantly slowing disability progression across the MS spectrum offers patients the promise of a near-normal life when started early with safe, high-efficacy, disease-modifying therapies.
Beyond pharmaceutical innovation, Roche actively contributes to building a stronger MS care ecosystem in India. Through strategic partnerships with the Multiple Sclerosis Society of India (MSSI) and collaborations with government bodies, Roche supports efforts to improve healthcare provider capacity for early screening and diagnosis. The company also advocates for fair and comprehensive insurance coverage and a more inclusive recognition of disability benefits, aiming to empower MS patients toward fuller, more independent lives.
Roche’s holistic commitment amplifies awareness, promotes timely intervention, and drives access to advanced therapies, reinforcing its mission to transform the journey of MS patients across India.
Disclaimer:
“Voices for Multiple Sclerosis: United Organizations Advancing Equity, Access & Empowerment” is intended for informational purposes only and does not constitute endorsement or ranking. Many other organizations are doing excellent work in this segment beyond those listed here. The order or inclusion of organizations in this list does not signify any ranking or preference. Readers are encouraged to explore further for comprehensive insights.